Links to helpful information about Congenital Adrenal Hyperplasia

and other issues important to our family

If you're aware of other links that may be helpful to others, please let us know!

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CARES FOUNDATION - Provides research, education and support for CAH
www.caresfoundation.org

If your child has been diagnosed with CAH,
this is the first website we recommend going to for information. 

It is by far the single best source of information for parents, families and those affected by all forms of CAH.
Though we have found that there is some information that we would offer (from our personal experiences) that
is not found on this website, they are certainly on the cutting edge of research and education. 
Angela hosts the San Antonio/Hill Country support group for our area.

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CONGENITAL ADRENAL HYPERPLASIA Education and Support Network
www.congenitaladrenalhyperplasia.org/

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MADISONS (Moms And Dads Iin Search Of Needed Support)
http://www.madisonsfoundation.org/

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THE MAGIC FOUNDATION (CAH Page)
www.magicfoundation.org/www/docs/100/congenital-adrenal-hyperplasia

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KATIE'S CLOSET
www.katiescloset.weebly.com
This site is a donation site for toys, stuffed animals and crafts for children in crisis.

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KATELYN'S LIGHT
www.katelynslight.com
This site is dedicated to two sisters, Katelyn & Zoe who suffer from an extremely rare condition that affects their ability to process bilirubin.  They must sleep under "blue lights" for a good portion of each day.
Please take a moment of your time and find our more about them, they're good people.

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GOLD CANYON CANDLE COMPANY
www.goldcanyon.com
This company was introduced to me during our Haylie's Hope "HAYLIOKE" fundraiser in May.  The people who work at Gold Canyon donated generously and the Prayer Child Foundation that the founders of Gold Canyon established also donated $1,000.00.  Because of the good works they do for others, please buy their products.  If you love candles and a good cause, take a look.  If you order a prayer child candle, 100% of the proceeds go toward the prayer child foundation which gives assistance to those with a medical need.

If you'd like to order, give me a call (210-380-5578) or e-mail me at haylieshope@yahoo.com.

 

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